Parent Resources
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Children's Books |
My Child Without Limits
http://www.mychildwithoutlimits.org/understand/rett-syndrome/ Rett Syndrome Handbook https://qnet.e-quantum2k.com/~dotgain/Custom/2018R/RETAIL/cgi-bin/nph-main.cgi RETT: There is Hope Documentary http://www.rsrt.org/about-rsrt/press-releases/new-documentary-on-rett-syndrome-released/ International Rett Syndrome Foundation (IRSF) http://www.rettsyndrome.org/understanding-rett-syndrome/family-support A Participant's Guide to Drug Research in Rett Syndrome http://www.rettsyndrome.org/document.doc?id=156 Books Keeping Katherine: A Mother's Journey to Acceptance by Susan Zimmerman Pathways to Learning in Rett Syndrome by Jackie Lewis & Debbie Wilson The Official Parent's Source Book on Rett Syndrome by James Parker & Philip Parker |
Just Like Me! An Educational Coloring Book
http://www.rettsyndrome.org/document.doc?id=52 Dani's Story (not a book, but great for kids to learn about Rett Syndrome) http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/dani.html Don't Call Me Special by Pat Thomas Living with a Brother or Sister with Special Needs: A Book for Sibs by Donald J. Meyer Views from Our Shoes: Growing up with a Brother or Sister with Special Needs by Donald J. Meyer |